Hoy nos unimos a mÃ¡s de 40 organizaciones europeas para pedir a los Comisarios de InvestigaciÃ³n y de Sanidad de la ComisiÃ³n Europea que la investigaciÃ³n financiada con dinero pÃºblico se defina segÃºn las necesidades de la salud pÃºblica y que garantice la transparencia, el retorno pÃºblico de la inversiÃ³n realizada con fondos pÃºblicos, asÃ como la promociÃ³n de la ciencia abierta.
Esta es la carta completa:
Dear Commissioner Gabriel, Dear Commissioner Kyriakides,
As representatives of 43 organisations including patients, consumers, doctors, payers, HTAs and public interest organisations, we want to express our views on the European Partnership on Innovative Health.
Under the future Partnership between the European Commission and the healthcare sector industries, a considerable amount of public funds will be allocated to health research and innovation projects. Strong stewardship by the Commission, from inception to implementation, is crucial to ensure that this large investment serves the public interest.
Numerous evaluations of the previous health partnership, the Innovative Medicines Initiative (IMI) have criticised the lack of inclusivity in the choice of research priorities, the governance structures and the dominance of large industry players, and have warned that scientific advisory groups have âno significant influenceâ on shaping the agenda. The European Commission should be seeking to reform the next partnership to ensure health authorities, academics, public health professionals and civil society organisations are robustly engaged in agenda setting, rather than taking a step backwards and entrenching the dominance of commercial interests.
A lack of transparency around funding, beneficiaries, governance, data and results, as well as a lack of alignment between industryâs research priorities and the public interest, has resulted in questionable output for public healthcare systems and the use of public money. We urge the European Commission to safeguard that the public interest is at the core of the future European Partnership on Innovative Health by ensuring:
- Priority Setting driven by public health needs
- Transparent, balanced and inclusive governance structures
- Public return on public investment and ensuring equitable access to publicly funded R&I
- Full transparency on R&I investments
- Open science
- Sensitive health policy issues to be discussed in inclusive multi-stakeholder platforms with strong stewardship from public authorities